دانلود کتاب Living in Death’s Shadow: Family Experiences of Terminal Care and Irreplaceable Loss
by Emily K. Abel
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عنوان فارسی: زندگی در سایه مرگ: تجارب خانوادگی از خدمات ترمینال و از دست دادن غیر قابل تعویض |
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جزییات کتاب
The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease.
The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.
Emily K. Abel is professor emerita at the UCLA–Fielding School of Public Health. She is the author of many books, including Hearts of Wisdom: American Women Caring for Kin, 1850–1940 and The Inevitable Hour: A History of Caring for Dying People in America.